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Taking charge of your health starts with meaningful conversations. This guide is designed to help you feel confident and prepared when discussing IgG4-RD with your healthcare team.
Preparing for Your Appointment
Track Your Symptoms
- Use a Symptom Tracker to record your symptoms, how often they occur, and how they impact your daily life
- Note any changes, new symptoms, or patterns you’ve noticed since your last visit
Gather Your Medical Information
- Create a list of all medications, supplements, and treatments you're currently taking
- Bring records of past tests, imaging, or other relevant medical history
Think About What You'd Like to Achieve During Your Visit
- Examples include:
- Gain a better understanding of your symptoms
- Confirm your diagnosis
- Explore management strategies
- Learn how to manage new symptoms
Empower Yourself with Knowledge
- Stay informed about IgG4-RD by seeking credible resources
- Advocate for your needs by sharing your experiences openly with your doctor
During Your Appointment
Share Your Story
- Be specific when describing symptoms: When did they start? How severe are they?
Are they getting better or worse? - Discuss how your symptoms are affecting your daily life, work, or hobbies
Ask Questions
- Make the most of your time with your doctor by asking these questions:
- Is this disease permanent, or can symptoms change over time?
- What tests are needed to confirm my diagnosis?
- What should I do if I experience new or worsening symptoms?
- What triggers flares?
- How can I best monitor my symptoms between visits?
- What management strategies can help with my symptoms?
- How will we track progress and adjust my management plan if needed?
Take Notes or Bring Support
- Write down key points during the conversation
- Consider bringing a trusted friend or family member to help you process the information
After Your Appointment
Reflect on the Visit
- Review any recommendations, test results, or next steps provided by your healthcare provider
- Make sure you understand your treatment plan and when to follow up
Stay Connected
- Use your Symptom Tracker to monitor changes
- Reach out to your healthcare provider if you have additional questions or concerns
IgG4-RD, immunoglobulin G4-related disease.
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